This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.


Friday, October 17, 2008


I'm at the Well Spouses Association meeting in the suburbs of Chicago. I got in barely in time for dinner, so don't have much sense of the group yet, but the people I sat down with instantly welcomed me and asked me about myself and my spouse. They liked my description that I am coping well but it is damn hard. The program tonight was honoring the founders of the organization at its 20th anniversary, but even that made me feel a bit teary to hear people talking about lives like what I now imagine.

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