Mine as well as his. I called John from work this morning and found that he was completely mixed up on who was going to come help him with house stuff when. But then he did get the taxes picked up and signed and I think he has done an application to a summer program for our son. I can't predict what he will get done and what will disappear into confusion. I'm trying to get him to get the boxes of National Geographics out of the house before he goes away Friday.
LEWY BODY DAILY JOURNAL
This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.
-------
Monday, April 13, 2009
Monday, March 9, 2009
fog
John says that most of the time he is in a fog, but when he focuses on something he can concentrate. On that one thing and nothing else--he forgot our appointment with the therapist because he was trying to find a study abroad program for our son for this summer.
Labels: confusion, Lewy Body Dementia
Saturday, October 25, 2008
confused day
Yesterday John was having a bad day. He was still asleep when I left early for work, so all I know is that he missed an 11 am appointment. His 96 year old aunt already had a document giving him power of attorney in both legal and medical matters but I wanted that modified to list me as a successor if he can't do it. They had an appointment with the lawyer to sign the new document.
I got home at 2:30 to go up to our son's school for a 4:30 appointment. John wasn't quite ready but the main reason we were late was unexpected traffic, due to accidents in the heavy rain. Driving up John asked confused questions about several topics. Finally I asked him if he knew of a reason why he was having a bad day. He said he didn't know the reason but he certainly was. We did enjoy the play our son was in: "The Complete Works of William Shakespeare, Abridged."
While we were driving, John and I did have a conversation about death, which feels valuable to me as a way of being on this journey together. I had sent him a link about Voluntary Stopping of Eating and Drinking but he hadn't read it. I am interested in the philosophical question--if one believes in leaving death in God's hands then what interventions can one refuse? A feeding tube? Antibiotics? IV fluids? Food and fluids? It seems to me very hard to draw a line. John commented in several cases that he thought that would be a painful way to die. I said research suggests it is not painful for the frail elderly, but I don't think he was convinced. I have the text of a couple of articles on that--email me (pam55sc at gmail) if you want them.