This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.


Tuesday, November 18, 2008


My daughter says my hair is darker at the ends, whiter at the top. I don't think you can really tell it in this picture, but it is some kind of a map of the last five or six years of my life. The changing waviness is because I wear it braided almost all the time.
Today in therapy I was feeling guilty for what a grudging caregiver I am with John, particularly compared to my willingness to take care of my daughter when she was sick. An ongoing situation is so much harder than a temporary situation, and I am still struggling to get past how important it has been to me to have an equal relationship with John.

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