This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.


Monday, September 29, 2008

LBD support group

I went this evening to our local Lewy Body Dementia support group. The organizer and I were the only ones to show up. We talked about how we might find more people. The local Alzheimer's association does let people know about the LBD support group--that is how I found out about it. She thinks the problem is that doctors in the area are not diagnosing Lewy Body Dementia. I suggested then maybe we should organize it as a Parkinson's support group with caregivers meeting separately. The closest Parkinson's support group is 30 miles away and meets in the early afternoon.

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