This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.


Wednesday, September 10, 2008


I helped host a visiting speaker Monday and Tuesday and I've been going non-stop. Today was nonstop until about 7 pm, but after dealing with a contractor about a roof leak I did get in a hilly bike ride with a friend, and I feel much better.

John and I met with the therapist Monday and I brought up how John is drifting, which he acknowledged. I asked him about what he wanted to get done, and he said first of all work on the historical research project he wants to do. I asked him if he wants to make a commitment to more exercise, and he said no. He takes a half an hour walk most days, goes to physical therapy once a week, and occasionally does the exercises at home. I wish he would go to the Silver Sneakers exercise classes that work on strength and range of motion.

I pushed him that he should start organizing and writing out information on his family heirlooms, and he said "give me two years before I start." I said we can't count on him still being able to do it in two years. I want to get rid of stuff, while he feels it is his connection to his family. I'm happy to keep things for the kids, but it isn't going to mean anything to the kids unless he writes down the information.

I asked him what he would do differently if he only had six months to live. He couldn't think of anything.

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