LEWY BODY DAILY JOURNAL

This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.

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Thursday, March 18, 2010

A Poem

By my cousin Patti Carey, struggling with cancer in her 30s:

Let It Go

Let go of the ways you thought life would unfold;
The holding of plans or dreams or expectations –Let it all go.
Save your strength to swim with the tide.
The choice to fight what is here before you now.
Will only result in struggle, fear and desperate attempts to flee
From the very energy you long for. Let it go.

Let it all go and flow with the GRACE
that washed through your days
whether you receive it gently
or with all your quills raised to defend against invaders.
Take this on faith: The mind may never find the explanations that it seeks,
but you will move forward nonetheless.

Let go, and the wave’s crest
will carry you to unknown shores,beyond your wildest dreams or destinations.
Let it all go and find the place of rest
and peace, and certain
transformation.

1 comment:

Kiki said...

I've only realized through research this past week that the dementia my mother's been experiencing for several years most likely is LBD and can't understand why doctors have not let my dad know what they are dealing with. But in my research, I came across this blog your experience is different and is occuring at a younger age, much has been relavant. This poem has been touching and I have printed it off for my own life.

I am also most interested in the discussions of oils and brain diabetes as I, myself (64) have recently chosen to lose weight by cutting out sugar and starches and amazingly have weight falling off with no other effort and have told my husband that this may be a permanent way of life for me now, given there is diabetes in my family. After reading your material, I also told him that this way of living may do me more good than what I originally thought, so not only may your sharing help the caretaker, but also someone who is concerned about their own future dementia potential.

Thank you so much - also particulary enjoyed Pauline and Hubbie. Roared with tears of laughter and poiniancy at Hubbie's top entry. So rustically elegant and well-said - much closer to where my 85-year-old mother is approaching that it hit home. Finally feel we are on track in understanding my mother and my dad's caretaker sitaution.