We got our windows washed today (the joy of living in a rural area was that it cost $12 per window). John was upset when he got home that they didn't look better, but I remember that even years ago there was stuff between the two layers of glass. He called me to tell me we needed to do something about the window washing people not doing a good job. I said I would deal with it and by the time I got home he didn't bring up the issue again. I'm noticing having to calm him down about things occasionally.
I opened all the curtains and shades for the window washers and it was so nice to have the extra light in the house. There is a small window on John's side of the bed and he keeps the shade drawn all the time. I had forgotten how much I like the shade open.
LEWY BODY DAILY JOURNAL
This is the story of Pam and John; she in her early 50’s and John is 62. Pam is a college professor. John taught at a local community college until diagnosed with Parkinson’s in March 2008, then Lewy Body Dementia in April.
-------
Thursday, April 16, 2009
windows washed
Labels: Lewy Body Dementia
Wednesday, April 15, 2009
decluttering
I have such a feeling of satisfaction when I get rid of bags of stuff and when I see spaces neat and organized (even if I am less good at keeping them that way). I don't think John has that feeling of satisfaction at all. Some of that may be new, but I don't think he ever much had it. What is particularly hard for him now, he says, is making decisions. I'm trying to take the approach of only keeping things I love. That works well for furniture and china and kitchen equipment, but I haven't figured out how to apply it to files.
Labels: Lewy Body Dementia, strategies
Monday, April 13, 2009
confusion
Mine as well as his. I called John from work this morning and found that he was completely mixed up on who was going to come help him with house stuff when. But then he did get the taxes picked up and signed and I think he has done an application to a summer program for our son. I can't predict what he will get done and what will disappear into confusion. I'm trying to get him to get the boxes of National Geographics out of the house before he goes away Friday.
Labels: confusion, Lewy Body Dementia
Friday, April 10, 2009
decluttering
The declutterer was here for 4 1/2 hours today and while she did a lot of laundry, she and John did start to tackle his things in the bedroom. Lots of long-lost things turned up. She's coming again tomorrow, then not again until Tuesday. He goes away Thursday and I'm hoping to have the house somewhat ready to show by then. John says I may be overloading him. But there may soon be water visible in the lake behind our house--the water level is coming up after a long drought. We need to get the house fully on the market. The undergraduate and I finished the garage.
Labels: Lewy Body Dementia
Thursday, April 9, 2009
busy
Yesterday I had some free time and the help of the undergraduate who works for us and got the garage almost completely cleaned out. John and the decluttering person did I think get more done today than last week when I was away. The main visible result is a lot of bags of trash piled in my office. I made the mistake of complaining about lack of visible progress and John got defensive about how hard he had worked. It is hard for him, and hard for me to recognize how hard it is for him to do things that go quickly for me. I can take on some joint areas like the garage but in other parts of the house the chaos is his and I need him to go through his stuff.
I went over Aunt Florence's list of medicines last night and saw several to be concerned about, including a hormone blocker to reduce the risk of breast cancer recurrence that can cause bone thinning. I don't think that is the right choice at 98 years old.
Three hours this afternoon with another contractor. We are hoping to have the bids by the end of next week.
Labels: Lewy Body Dementia
Monday, April 6, 2009
no way to know
I went with John and his aunt to her appointment with an orthopedist. Two weeks ago John took her without me and afterwards told me the orthopedist said she didn't have a new fracture, just arthritis from trying to do too much while healing from the old fracture. Today I asked about the arthritis and the doctor looked at me like I wasn't making sense and said she is healing from a fracture of her tailbone as well as the earlier fracture of her pelvis. So did John misunderstand two weeks ago or was the doctor covering up something he missed then? No way to know.
Labels: doctors, Lewy Body Dementia
book: Hearts of Wisdom
I finally finished Hearts of Wisdom: American Women Caring for Kin, 1850-1940, by Emily K. Abel. I found it helped me step back from my own experience, see it in a much larger context. She ends the book with some lessons for the future, including this:
Women who view caregiving as a way to achieve greater intimacy with care recipients, to demonstrate competence, and even to attain "hearts of wisdom" want to be relieved of intolerable burdens, not to upload all their responsibilities on the state.
I got home Saturday night from a conference in Rochester NY, though it was a near thing because of a seriously delayed flight. I did get one call from John while I was away about a door inside the house that he thought had somehow become locked--it turned out it was just stuck. I had caught up on sleep some while away but I still felt very tired yesterday, setting back in after my trip. John went with friends to an art exhibit in Atlanta and had a good time.
Labels: books, Lewy Body Dementia
Wednesday, April 1, 2009
renovation planning
I spent four and a half hours with the designer and two contractors at the house we will be renovating. The good news is that having the designer supervise the whole process seems to make sense to everyone (and his charge for that service is extremely reasonable). It was a productive meeting--everyone listened to everyone and they came up with some new ideas, particularly for how to improve a problematic stairway. But I'm tired; it is hard to deal with on top of my job and worrying about getting our current house ready to show. And it is going to cost more than I had hoped.
I'm going out of town tomorrow for three days. The person who is helping John declutter and organize his stuff will come twice while I am away. I hope it goes well and they get far.
Labels: home renovation, Lewy Body Dementia