Lewy Body Dementia. A Daily Diary of living with and caring for a person with LBD
Saturday, February 28, 2009
away
Tuesday, February 24, 2009
feeling a little better
Monday, February 23, 2009
I give up
Saturday, February 21, 2009
weekend away
I said that I believed that for older people a good death is possible. Our daughter thought Florence would be a good example, I think because she has had a full life. I said I wasn't sure Florence was going to feel ready. We talked about my father's death, which was sudden, the way he would have wanted it. We didn't mention John, but it still felt valuable to me to talk about death as something that can be natural and peaceful.
Tuesday, February 17, 2009
I hope it works out
I'm going with them to her orthopedist tomorrow because I don't think either of them will push the doctor for the information she needs.
Monday, February 16, 2009
progress
I got letters about our situation mailed to the college financial aid offices and got my first round of grading done. Talked to our daughter, who is upset about the death of a student at her school. I'm tired. We are doing the best we can.
Sunday, February 15, 2009
making progress
Saturday, February 14, 2009
life is uncertain
Friday, February 13, 2009
how to prioritize
Tuesday, February 10, 2009
getting things done
I started the process of letting out my frustrations by doing an art work:

Monday, February 9, 2009
too many different directions
I don't have the time--even this weekend I'm committed to a local conference all day Saturday. I did call about her scooter, but the person I needed to talk to didn't even call me back.
Saturday, February 7, 2009
done right?
When she first was injured I wondered whether to skip a meeting that I had promised to be at, and I told myself that if I wasn't there everything wouldn't get done right, but that was ok. I'm having trouble holding on to that philosophy. John just left the clothes Florence had been injured in in a plastic bag from the hospital until I started gathering her laundry to do. When I put the laundry in our washing machine I discovered that her bra with breast forms was in the bag from the hospital. Realizing that now she is getting dressed she probably wants that very much, I told John that the plastic bag that was over one of the hangers was particularly important, to make sure to give it to Florence when he took her her clean clothes. I think I even told him why.
That was Tuesday. Friday he called me because Florence had asked where her underwear was from the hospital. I told him it was in the plastic bag over one of the hangers. I said I had told him it was important, to give it to her right away. He said "You know I forget things." I feel badly for Florence. But telling myself it was important so I should have done it myself isn't really realistic.
Thursday, February 5, 2009
computers
Wednesday, February 4, 2009
finding meaning
- I could be miserable and just endure and take antidepressants (I really don't want to do it that way)
- I could feel a calling to this new life, to the challenges I face (that is what I want but so far it isn't happening)
- I could be patient and wait for the meaning to gradually develop after I have been doing it for a while (people seem to think that is the most likely, but I'm not patient with it, it feels like just being miserable)
- I could see this as a new stage in life where instead of measuring myself by concrete accomplishments I need to be aware of the more subtle ways in which I make some contribution, some difference in the world.
I see potential in that last one because I've been struggling not to fall into feeling that somehow I'm being punished or taught a lesson by losing so many of my hopes for the future at once (John's illness and the almost-definite dismantling of the program I've spent the last five years building at work).
I'm pretty good at looking for opportunties when things don't go the way I expect; this would be a similar mindset of seeing the more subtle good that comes from what I'm doing. My program may end but the professors who taught in it will take those ideas into other courses. John and I can't do as much as I had hoped but what we do is still a role model to our children.